nhs patient data
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Single Patient Record (and ID cards…)
The Health Secretary has told his friends that the first part of his “Single Patient Record” will be rolled out by the end of the year. We expect this rollout will be a “pilot” of the now-merged Department of Health in England (i.e. DH and the “abolished” NHS England) using government powers to impose decisions… Continue reading
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Government’s plan to Genome Sequence every baby at birth from 2035
What is new is that Government wants to sequence every newborn, all the kids who aren’t sick, because it ‘might be useful’. It’s definitely good for those who sell sequencing machines; it’s good for Palantir and Amazon who will be processing all this data, and it’s the preclude to the 10 year plan for the… Continue reading
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Rollout of Palantir’s NHS technology is NOT going to plan!
I’m getting in touch with an important update on the controversial NHS Federated Data Platform (FDP) run by pro-Trump US spy tech company Palantir. To recap, last summer Health Secretary Wes Streeting sought to speed up the rollout of Palantir’s technology by demanding that all NHS Trusts in England adopt it. We feared that this… Continue reading
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The selfish fiction of “Safe Return” is reckless and unsafe
The “five safes”* Trusted Research Environments model has been tested over decades, meaning “safe people” doing “safe projects” on “safe data” in “safe settings” to produce “safe outputs”, and while the precise meaning of the five safes evolves with the context and the datasets, half baked additions of “new safes” weaken the whole model for… Continue reading
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NHS data grab *delayed*
The Government has buckled and delayed the NHS data grab! The collection will now take place on September 1, 2021. Continue reading
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Palantir – UK Gov’t sued for selling critical NHS database to foreign power
At TruePublica, we took the view that Britain should not be ‘world-beating’ at being the most surveilled nation of any Western democracy in the world. For five years we reported with our partners that state surveillance and the ending of privacy was a matter of public interest, not a political plaything for some politicians to… Continue reading
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Patient data from GP surgeries sold to US companies
7 December 2019 — The Guardian Dealings with international pharma raise new fears about American ambitions to access NHS Toby Helm Data about millions of NHS patients has been sold to US and other international pharmaceutical companies for research, the Observer has learned, raising new fears about America’s growing ambitions to access lucrative parts of Continue reading