medConfidential Bulletin, 23rd July 2021

23 July 2021 — medConfidential

GP data grab; paused again, but still going ahead

If you asked NHS Digital for opt-out forms and the forms didn’t show up, or took ages to arrive, people tell us that happened a lot. You can get forms from us here.

We’d like to be able to tell you that you will have more information on the ‘GPDPR’ data scheme in the future than you have today – but, as you’ll see below, that’s not a promise the Government was willing to make.

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UK: medConfidential Bulletin, 11th June 2021

11 June 2021 — medConfidential

What just happened?

On 12 May, NHS Digital quietly announced there would be a new GP data collection, known as ‘GP Data for Planning and Research’, ‘GPDPR’ – or the #GPdataGrab, for clarity.

NHS Digital and the Secretary of State, who on 6th April had Directed NHS Digital to run the scheme, hoped no-one would notice.

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Matt Hancock has quietly told your GP to hand over your health data. Why?

28 May 2021 — Open Democracy

If you live in England, all your encounters with your GP – information about your physical, mental and sexual health – could be ‘sold’ to third parties

Phil Booth

The government wants your GP data, and it hasn’t given GPs much of a choice

From 1 July this year, if you’re registered with a GP in England, the government will be taking a copy of every medical event your GP recorded on their systems since you first registered with them. (Your children’s records, too, if you have children.)

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US spy firm at centre of sensitive NHS patient data grab

8 March 2021 — True Publica

US spy firm at centre of sensitive NHS patient data grab

The story below tells of alarming backroom deals being done without public or parliamentary scrutiny into the highly sensitive (and extremely valuable) NHS patient data system.  The company involved is Palantir, a highly controversial American company that TruePublica has reported on several times in the last few years – that was at the centre of the Facebook/Cambridge Analytica Brexit scandal.

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NHS: Matt Hancock Still Doesn’t Tell You How Your Data Is Used – December 2019

December 2019 — medConfidential

There should be a price for misleading public statements about the NHS, whether about data or everything else.

Since our last update, and our first update in 2014, what a Data Usage Report should contain has reached consensus. The NHS has made some progress – not that you as patients will have seen any of it – and while NHS Digital calls it a Statement, rather than a Report, that is probably a better word.

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