medConfidential Summer Roundup, 21st July 2017

21 July 2017 — medConfidential

A longer version of this newsletter is available on our website.

Before everyone starts their summer, here are a few ‘tied-up loose ends’ that had previously been left dangling.

Your GP records: If your GP uses TPP or EMIS, you can today begin to see how your data has been accessed. Neither TPP nor EMIS yet cover their research databases, but they will have to shortly because of the findings of the Caldicott Review.

Caldicott Review: The Government has finally responded to Dame Fiona Caldicott’s 2016 Review. It has committed that you will be able to see how your records have been used, both for direct care and all other uses. This will be phased in “by 2020”, mostly (we hope) in 2018. If you have opted out, you will be written to about any changes before they happen.

Google DeepMind broke the law by copying 1.6 million medical records, according to the Information Commissioner – and the company was rebuked by its own Reviewers. medConfidential’s complaint was found to be true; Google’s statements, not so much.

Brexit: As Brexit Britain draws closer, and having already introduced measures that try to make NHS staff hassle brown people for documentation, the NHS now faces a three-way stand-off – a ‘Brexit Triangle’: does the Department of Health now direct NHS staff to hassle everyone who looks or sounds ‘foreign’, or to hassle absolutely everyone, or do we give in and issue everyone with ID cards?

We may not know the outcome – but we do know that, armed with facts, every patient can speak with the authority of their own lived experience of the NHS. Please do keep informing yourselves, and informing others. Maybe you could share this newsletter with them?

What’s next? We hope you enjoy your summer. We have quite a lot to do, getting ready for when Civil Servants and Parliament return in September. Our NHS friends are, of course, working all through the summer. We wish them, and you, well.

Phil Booth & Sam Smith

21st July 2017

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